Why I thank God for Netflix

Tristan at 16 months old.

Tristan at 16 months old.

As parents, we hear all the time how horrible it is to let your kids watch copious amounts of television. But what if, through television we are able to cross the border of no words to talking in sentences? My son, Tristan, has Autism. At 17 months old, he stopped talking. He used to say words for milk, Grandpa, eat, various colors and shapes, letters, animals and their noises, plus many other things. I remember taking him Trick or Treating at 15 months and he would say his version of “trick or treat!” at each house followed by “thank you.” Both of these words were very mispronounced because he was so young, but the point is…he said them. Then at 17 months, all language stopped. He wouldn’t sign the few signs he knew either. He wouldn’t say “bawk bawk” when we gave him chicken for dinner or “Gra Gra” when his Grandpa walked into the room. But 17 months was the same time that his brother, Graham, was born. So we pushed the language backsliding to the back of our minds. “He doesn’t want to talk because the baby doesn’t have to” we’d say. It sounded right.

Deep in thought over the flavor of the chocolate croissant

Deep in thought over the flavor of the chocolate croissant

At almost 3 years old, Tristan still wasn’t talking. We started to notice that he avoided eye contact with strangers and ignored other kids. I had an itch at the back of my mind when I read an article about Autism. The itch said “this is Tristan.” After a brief questionnaire at his pediatrician’s office, a speech evaluation, and finally an Autism eval, we had a diagnosis. Autism. The itch had been right.

But Tristan started talking. It wasn’t anything we said. It was from Disney movies. He would sing “Beethoven’s 5th Symphony” from Fantasia 2000 when they put it on Netflix. He even sang it at his special Pre-K teacher to get her attention one day. Now, Tristan says sentences that the characters say and then looks us in the eyes so that we repeat him. Progress. I don’t know when I would’ve heard Tristan say “Happy Birthday” if it weren’t for the Disney short films collection that is on Netflix right now (Anna sings happy birthday to herself in the Frozen short).  Now that he is in therapy 32 hours per week, plus 4K (half days), we’ve been hearing more and more. He has even begun repeating us when we say things! It’s amazing!

I truly believe that Netflix and Disney have helped him get this far.

An almost two-year old Graham

An almost two-year old Graham

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An almost three year old Graham

Now, we just received news about Graham, who will turn three on December 5th. Graham has been in the Birth-3 program since he was two. He never spoke as well as Tristan did before he was 17 months and we wanted to help him as soon as we could. But Graham is the exact opposite of Tristan, so we never dreamed that we would receive the news from his IEP evaluation at his soon-to-be school. Educational Autism. This means that although Graham doesn’t have a medical diagnosis of Autism, he is showing all the signs, so the diagnosis is given so they can begin treatment when he starts school after his 3rd birthday. Can you imagine getting this news? Again? Luke and I can and it’s definitely a punch to the stomach at first. We know that Graham hasn’t changed. He is still the same amazing and lovable kid. I know this. Luke knows this. But Luke still tried not to cry in front of the evaluators giving the diagnosis and when he called to tell me. And I still felt my heart jam up into my throat as I tried not to sob all over my keyboard at work. People tell me it’s ok to mourn what could have been. Or not to feel guilty. That it wasn’t anything we did.

12185058_10204758790721864_7234474855946109913_oI get home that night and give my kids a hug. Nothing has changed for them. We are watching the Disney shorts again and the one about Nessie comes on. The boys like the part where the friend of Nessie says “Only wee babies cry…” and then coughs all over the place. They look at me to say the line with the character. Tristan repeats what he can. And Graham copies the character’s ragged cough and grins at me.

I grin back.

It’s going to be ok. Because the boys are right. Nothing has changed.


I also want to thank my gigantic group of online mommy friends (you know who you are). You helped me get through my initial freak out over the whole thing this week. I don’t know what I would do without your love and support through both good and hard time. I love you all!


I am not affiliated with Netflix or Disney in any way. I just really like them. 

Back-burner or Burn out

12032691_10204580704989832_8054164986083898236_oI have this problem where I can’t say no. I seem to love piling more things on my plate when it seems like there is no way I can fit one more thing. I still find a way to make it work, even if it feels like I’m going to burn out sometime soon.  Anyone else have this problem? I read an article recently where a successful business woman said she started feeling empowered and happy when she learned to say “no.”

Unfortunately, I am not at that point in my life. I’m still figuring this whole “life” thing out .  As a 27 year old woman (who still thinks of herself as a kid sometimes), mom of two toddlers with special needs, a wife to a very patient and understanding husband, 12006462_10204526064343850_2764033057492316414_oaspiring author, full time career woman/part time job woman soon, plus a plethora of other activities, I don’t have enough hours in the day to breathe.
Someday, I will wake up and say “You know what? NO.” And probably smile and go back to sleep. But for now, this is what needs to happen for my family’s survival. Some of the more “fun” activities do need to be pushed back. There’s no time to write every night anymore. But bills will be paid. And my kids will be fed. Sometimes that’s all you can ask for!
 However, I don’t want to burn out. If I burn out, how can I work to provide for my family? I do need to say “no” to a few things I would maybe rather be spending my extra minutes on.
Maybe I won’t finish my novel this year. Gray’s Shadow will sit sadly on the back-burner of my to-do list until things calm down again or at least have a free five minutes that belongs only to me.
But my kids are happy. There’s no way I’m putting that priority on the back-burner.
(Oh and for those confused by the header of image, my dog’s name is Juice) 😀

32 Hours PER WEEK

“Those who qualified for the State funding ABA waiver need to have 32 hours of EIBI therapy per week.”

I almost choked on my snack sized pretzels.

I’d arrived first at the parent orientation for my son’s therapy. ABA stands for “Applied Behavior Analysis.” This is one type of therapy that works really well for kids with autism. The reason for so many hours is EIBI or Early intensive behavioral intervention. This means get them as much therapy as possible while they’re young so it’ll have a higher chance of succeeding.

Tristan was diagnosed with high-functioning autism last July, just after his 3rd birthday. We waited one year on a waitlist to be approved for this funding, because we definitely couldn’t afford therapy on our own at $200 or more per hour. His name was finally at the top of the list and I couldn’t be more happy!

Arriving at orientation, I donned my name tag and grabbed a handful of pretzels. I didn’t know what to expect. Would there be lots of parents here? Should I have made Luke come with me? The chairs slowly filled up. Three other moms filled those chairs. Moms going through the exact same thing as me. But, none of us talked to each other. We all stared at our phones until the presentation started.

We introduced ourselves briefly when pointed to and then listened to one of the intake coordinators tell us about ABA therapy. It sounds awesome. Then they dropped the bomb. Tristan would be in therapy 32 hours per week, for a total of at least 120 hours per month. I was excited! This is going to change his life for the better. School (4K), combined with ABA is going to change his life.

The significance of that was mind-blowing!

Then that bomb made impact as the common sense washed off some of my elation. I work full-time. Luke works full-time. Will one of us have to quit our jobs? Will we be struggling to pay bills again? WHAT ARE WE GOING TO DO?

What are we going to do…11703571_10204293173161716_8076268094690388178_o

After freaking out for a little bit (at home, not at orientation. I am good at being ALL SMILES in public, even if I’m freaking out on the inside), I took a deep breath. Luke and I prayed about it. No, we still don’t know exactly what we’re going to do, but whatever happens with our jobs or money, one thing is certain.

This therapy is going to change Tristan’s life for the better. Anything is worth that.


Hey all. I haven’t posted a Tristan update in a while. He is doing great, but I am ready for school to start! He is ready too, I think. I am not the best at routine and tend to just “go with the flow” when I’m home on nights and weekends. I am working at getting better at that.

Later this week, I have another author interview planned so be excited!

– Katy

T is for Tristan

Tristan, almost four years old, is my first born son. I wanted to feature him for the letter ‘T’ of the A to Z Blogging Challenge.

The Good: Tristan is amazing. I can’t believe he’s almost four already! His joy radiates off his face at all times, which is infectious. Tristan attends school near our old apartment for the remainder of the year, which is a bit of a drive, but we felt it was important to finish out the year at the same school he started with at the beginning. It feels like Tristan should still be a baby, but now he is tracing letters and helping with chores. When did this happen? Where was I?!

The Bad: Ok, this isn’t really bad. It is a challenge, but it definitely isn’t bad. Tristan was diagnosed with autism in July of last year (a week after his birthday). He is very high-functioning, learning a lot in special Pre-K, and is signed up for Kindergarten next year. I still don’t know everything about autism, but we are pretty much a “figure-it-out-as-we-go” sort of family and it seems to working for us so far. Tristan does make eye contact and interact with others, but doesn’t say many words (getting more and more words each day though). He also isn’t potty trained yet, which people say will happen when he’s ready. He seems pretty dang content in diapers at the moment. SIGH

The Katy: We named Tristan after the main character of the same name in the movie “Stardust.” Luke proposed after the credits, which was a perfect moment in time. It was only fitting to name our first son Tristan (yes, I know it’s actually Tristram in the book, but we liked this version of the name better).
I am starting to think about Tristan’s birthday party theme. Last year, it was a popsicle theme, which turned out AWESOME. He likes a lot of things and I know he will have fun no matter what theme I choose. Party planning is my (not-so-secret) joy. Love you, Tristan.

Q is for Quiet

Q is a difficult letter. Do I want to write about quitting? Not really. Quail? No idea…I have never even eaten quail. Although those cute little quail eggs on Food Network shows are super cute/look delicious. But still…no. I decided on quiet. Beautiful, glorious QUIET. View other ‘Q’ posts from other blogs participating in the Blogging from A to Z Challenge, here.

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It’s quiet…too quiet…

The Good: After having two kids, my definition of the term ‘quiet’ is redefined. No longer does it mean: total silence or hushed voices. Now, it means: “They aren’t screaming. They are only yell-talking (it’s a thing)! What a peaceful day!” or “They are pretending to nap (banging on the door of their room) so I have ‘Rainy Mood’ playing while I try to nap.” Quiet is a beautiful thing, no matter how deluded I am.

The Bad: Complete silence reaches my ears as I reach into a cupboard to sneak a cookie when the kids aren’t looking.

That innocent face

That innocent face

A feeling prickles the back of my neck…something is off. It’s TOO quiet.

Running to my bedroom (only TV in the house right now), I see Tristan surrounded by a spilled box of Hamburger Helper, calmly chomping on raw noodles. Phew, he didn’t color on the walls or squeeze toothpaste all over the carpet. I leave him eating noodles and walk back to my cookie to find Graham has half of it shoved into his mouth. Sneaky bugger! Quiet means trouble. It could’ve been worse, but I’ve been getting better about not leaving stuff out for the kids to get into. Because they will. And the only warning I’ll receive is total silence.

The Katy: Ok, so the kids aren’t always yelling. Often, at least one of them falls asleep during actual nap time and Luke and I get a little quiet time to ourselves. At this time in our life, a nap can be the most beautiful kind of quiet time.

K is for Kickstarter

The letter K is today’s letter! Instead of doing something boring like “Katy” or “Kittens” (ok, both of those things are pretty awesome…) I decided to write about my newest obsession: Kickstarter! To view other blogs in the A to Z Challenge, click here.

The Good: Kickstarter is an awesome website where people can start campaigns about anything they want (within reason). The campaigns can be anything from art or theater productions to board games and design (my favorites). I want to mention one of my favorite campaigns that I’ve backed so far. 10402460_10203624855374189_3073201931604935197_n

The first is the “PhillUp Cup” by Puj. PhillUp is a color coded cup system that hangs on the fridge. The cups match the hooks and everyone can have their own color. We are on our first week of having the cups hanging on the refrigerator and it’s amazing! Graham refused to drink out of any cup that wasn’t a sippy cup. In fact, the last cup we gave him was chucked across the table, causing another cup (a breakable one) to cascade to the floor. Oh the drama, Graham. Right when we took the cups out of their packages and let the kids pick a color, Graham wanted to drink out of it. He still needs a little help, but the cups aren’t too heavy for his little hands to hold onto (it’s just user error at this point). Tristan is a pro. I gave him his orange cup and showed him that he needs to hang it up after he was done. He ran to the fridge from his seat and almost face-planted. He is fine, don’t worry! I would highly recommend the Puj PhillUp Cups to anyone. We bought the four pack so Luke and I could have our own color too. Now, we don’t have empty water cups all over the counters. Revolutionary! View the funded PhillUp Cup campaign here! (I am not being paid by Puj. I just stumbled upon this campaign and had to have it!)

PhillUp looks awesome! Much more organized than the kids' art.

PhillUp looks awesome! Much more organized than the kids’ art.

The Bad: Now that Luke and I are budgeting better, I can’t back as many campaigns. This probably could fall under “The Good” as well because I know I NEED to spend my money on other things, like…diapers and food. Kickstarter is addicting, so be careful how much you back at once! Most campaigns are not around much longer than a month, so when all of the campaigns you’ve backed at the same time are done, all of that money is going to come out of your account. At the same time. So, just be smart!

The Katy: I will continue to back Kickstarter campaigns (just not so many at one time). In fact, when I receive whatever item for the campaigns I’ve backed, I will put a new review here on my blog. So, even if you missed backing their campaign, you can get a first look at some great items that you can buy in stores! Like, the Puj PhillUp Cup. So great. Follow me on Kickstarter here!

Happy New Year! 2015 is Here!

2015 is here! Last year was an equal mix of good, difficult, and awesome. I know 2015 will bring more of the same and I am ready! But first, some highlights:

1. Luke, the kids, Juice, and I moved to our own apartment (like real adults, people!). It felt awesome to have some space to kick around.

2. Graham started sleeping through the night! SCORE. It is amazing how more hopeful I am now that I get a full night’s rest.

3. Luke and I celebrated 6 years of marriage in July. Luke is pretty cool. I guess I’ll keep him.

4. Tristan turned 3 in July. He also was diagnosed with Autism (ASD) this month. It was a heartbreaking thing to hear that my child wasn’t “normal”, but it was a good thing to get an early diagnosis. He is in special Pre-K now and improves his language skills everyday! Walker_071

5. July was a busy month! I also got a new job at Wisconsin Evangelical Lutheran Synod as their Missions Event/Production Coordinator. I schedule speakers for events, make things pretty with graphic design, and other awesome random things. It feels nice to be using my degree (even though I miss my Starbucks family).

6. Graham also started therapy for speech. He is also improving. Hopefully, his language skills will explode soon!

7. After watching the show, FaceOff on SyFy, I decided to give Special FX makeup a try. I love it and am very excited to keep growing in my skills! Halloween was a lot of fun. My cousins, Nicole and Natalie, and I were a zombie hoard. I got a lot of compliments on my makeup, which felt great. (See some FX makeup posts here and here.)

8. In November, I joined thousands of people from all over the world for National Novel Writing Month. The goal was to write 50,000 words in one month to win and I did it! (See post here)

2015

Generally, I don’t make resolutions. Resolutions feel like they were made to be broken and I want to better myself without that pressure. Saying that, here are some hopeful goals for 2015.

1. Stop renting! I am sick of wasting money on a place I am renting. We are throwing money away instead of into something that we own. Yuck. Done. We are making baby steps towards a house for us to grow into!

2. Hear those babies talk! Both Tristan and Graham are getting better each day with talking, but still have a long way to go. Tristan is getting pretty good at repeating things he hears, but isn’t consistent yet. Graham babbles a lot, but doesn’t make clear words or sentences. With some more help from school and therapy, they will be pros soon!

3. Travel. We hope to meet Luke’s parents halfway (ish) this summer! It’s been awhile and I am excited to get out of the state again.

4. Finish my novel.

5. Get better at creating special effects makeup magic.

6. Get more involved in church stuff.

7. Get in shape (on everyone’s list)!

I just know this year is going to be amazing. 😉

Walker_140

 

Finally Friday!

It’s been both a long and short week. I don’t know how that works, but it does! More importantly, I was astonished to see that I haven’t written a post in over a year. Oops.

Moving right along….I joined an awesome Facebook group called Band of Dystopian Authors and Fans. This is an awesome group of people, some of them bestselling authors, who all share many of the same interests and ideals. Our moderators keep us entertained with discussion questions, giveaways, and random commentary. Every has been a team player so far and the atmosphere is welcoming and encouraging. I recommend it to anyone who loves dystopian literature.

Since it is October, I am costume planning for both the boys and myself. I want Tristan to be Toothless from How to Train Your Dragon and Graham will be Hiccup. I am pretty excited about their costumes since I don’t think they’ll be too difficult, yet look awesome. Plus, they can re-wear them for Graham’s HTTYD party in December. I will be sort of sad when they want to choose their own costume ideas. 😉

Here are my preliminary drawings for the boys’ costumes. I really wanted to make him the Hiccup costume from HTTYD 2 because it’s awesome, but I think it’ll be too tight for his big ol’ belly and too much work and detail for something he is going to outgrow soon. Instead, I’ll make it for me sometime. Instead, Graham can be Hiccup from the first movie. The costume will be a lot simpler. I doubt he’ll keep the helmet on his head, but I can make a strap for it to attach to his back or just go with a shield instead. Other than that I just need brown boots, fur vest, green shirt, and a belt. Easy!

2014-10-08 13.37.39imageToothless will be a little trickier, but I’m connect the entire thing to a black zip-up hoodie to make is a little easier. I’m hoping to use painted pushlights for the eyes so they actually light up. I have various black materials to create scales. I’m excited about the clawed hands because I hope he can wear them all winter as gloves. I’m collecting supplies and starting this weekend. Wish me luck!

My costume is not going to be too hard. I’m going to begin practicing with FX makeup. I’m a big fan of the show FaceOff on SyFy and am beginning to collect my own makeup kit. I’ll be a steampunk zombie for Halloween so I can focus on makeup. I already have some outfits in my closet that can qualify as steampunk so I’ll wear that and layer item and gross zombie effects on top.

Photos to come.

My kid is two. Whaaat?!

I know every parent goes through this, but I still am in shock. Or denial. 

Tristan is two. He was born July 8th, 2011 at 5:59PM. He weighed 6lbs 2oz. 

I decided to throw him a Mustache Bash for his 2nd birthday party! Complete with photobooth, mustache pins for the guests, and a mustache cake. It was amazing! I know he won’t remember it and the theme is actually more for me…but it was fun! He jumped into the kiddie pool fully clothed! 

I know next year I will be in denial again, but for now I will hold my baby…err…toddler tight for one more year. 

Love you, Tristan. And happy birthday. 

Love, Mama.

Baby T
This was when he was little…sob
Tristan had a great time at his 2nd birthday party!

 

Ugh…

Being sick is the worst. Especially in Summer, since I definitely don’t plan for having a Summer cold. So ugh. 

Plus, I am trying to plan everything for Tristan’s Birthday Party on Saturday. Definitely not the best timing! 

I can’t believe how fast time has gone. He was just a baby and now he will be two years old! AH! 

Since he is too young to even care that he gets a birthday party, I get to choose the theme. Last year I threw his a cardboard box party. It was so much fun! He had a blast crawling through the cardboard tunnel I created. 

This year the theme is a Mustache Bash! Mustache balloons, a photo booth with props, and even mustache games. I am probably more excited than I should be considering it isn’t my birthday! 

So, I am taking vitamin C, drinking plenty of water, and resting (when possible with these two crazy kids around) so that I can throw Tristan an amazing birthday party. 

I can’t wait!

Tristan, Age one

                                   Tristan, Age one

Tristan and Daddy

                                        Tristan, almost 2